ZOE

Lennox Gastaut Syndrome

MY NAME IS ZOE.

THIS IS MY STORY.

Zoe is 8yrs old and suffers from Lennox Gastaut syndrome and a mitochondrial disorder. From the age of 6 weeks old Zoe started having grand mal seizures. She would have up to 50+ a day. We have been on numerous seizures meds without success and also have a VNS implant and also on the ketogenic diet through a feeding tube. Still we are having 15+ seizures a day. Zoe has global developmental delay from all of the seizures and we are so hopeful that this year they will pass this cannabis oil. Our children are running out of options and are desperate for this life saving medication.

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