Lennox Gastaut Syndrome
MY NAME IS ISABEL.
THIS IS MY STORY.
My name is Isabel Duffy. I’m 16 years old and I live with my grandmother. I have Lennox Gastaut Syndrome, an intractable form of epilepsy. I have had seizures since I was a baby. I have tried many drugs but none of them help; I have seizures every day and several times during the night.
I have made many trips to the ER for stitches and broken bones because of the seizures.
I have an aide that stays with me at high school so I don’t get hurt. I love school and I have lots of friends there.
My grandmother and I want HB1 to pass so we can get my seizures to stop or at least to slow down.